![]() The hospital was going to order the injections, the specialty pharmacy was quoted with a 20% I needed to pay at $26000 for six injection pack (I could buy a new car every year at these prices). The infusion center did not want to do injections, eventually I found the nurses that will go to your home to give injections. I tried starting with the injection being given by a nurse at the hospital. Rejected at every point since I was on Medicare and was also exceeding the maximum income and they counted my wife's pension as well. I went through several phone numbers, was in constant touch with the Stelara nurse navigator, tried multiple ways to get in the patient assistance program. Had the infusion and experienced very good results. I was so excited to finally getting to FDA approval. Been waiting all these years for it since I have been through Humira, then Entyvio, then Remicade.Įven went on a consultation in 2016 with one of the worlds expert in Stelara, Dr Gil Melmed, which led the UNITI 2 study of Stelara that had 297 patients. I was the biggest cheerleader for Stelara since I participated in the clinical trials in 2006. I would appreciate any experiences &/or advice or suggestions.I feel completely hopeless now of ever getting better. What did you do about the cost & not qualifying for the co- pay assistance because you have Medicare drug coverage? I know I can't be the only one with Medicare who needs biologic medication. I'm 55 years old & my goal is/was to get the Crohn's under control and get to a point that I felt better & good enough to go back to work, at least part time, hopefully full time! I had gotten my hopes up that I was finally going to get treatment that will make me feel better, & this information just crushes my hopes. So what am I supposed to do? Of course I can't pay $3,300 per dose - who could? I just went to the Stelara website & it says patients with Medicare are not eligible for the co- pay savings card. I just talked to the nurse at the infusion center & she said my co- pay for Stelara is $3,300.00 but that there was an assistance program that would reduce my co- pay to $5- $15 if I qualify. I'm on SS disability & have Medicare A, B D. My doctor wants to start me on Stelara this is my first biologic.
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